“La asombrosa historia de una niña rusa de 8 años con el corazón fuera del pecho y su travesía en busca de su sueño.”

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“Soy una emotiva travesía a Hollywood, protagonizada por una asombrosa niña de ocho años que enfrenta una enfermedad congénita notablemente severa, la cual ha dejado su corazón vulnerable fuera de su pecho. En 1980, emprendió un viaje a Estados Unidos en busca de intervención médica especializada y una esperanzadora restauración.”

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“Varvara Borun, quien nació en Rusia, sufre de una rara enfermedad congénita, también conocida como Pentalogía de Cantrell, que afecta cinco órganos principales.”

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“Su corazón es protegido por una fina capa de piel, mientras que ella también carece de parte de su caja torácica, un diafragma, y algunos músculos abdominales.”

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“Un video publicado en YouTube el lunes (Septiembre 18), titulado “Vivir y Amar” muestra el valiente corazón de Varvara mientras late fuera de su pecho.”

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“Su historia comenzó a tomar luz en 2015, cuando Varvara’s mother, Daria Borun, buscó ayuda para sus costosos tratamientos médicos.

La campaña ha recaudado más de US$71.000 (S$95.600) desde que comenzó en agosto de 2016.

La Sra. Borun había recurrido a Florida en busca de una solución para la cirugía de su hija, pero le dijeron que Varvara estaba demasiado desnutrida para someterse a la operación.”

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